Article about Home Management Device
www.portland.bizjournals.com |
This article includes a description of a collaborative effort to develop a home assessment device for individuals with Parkinson's disease. The NCVS has been directly involved in development and analysis of the voice and speech section of the protocol. Data are expected to provide insight into disease progression, and devices may offer additional means to manage PD. |
American Parkinson Disease Association
www.apdaparkinson.org |
Provides general information for individuals with PD, their families, and health professionals. A major focus of the APDA is on support groups and referral centers throughout the country. |
American Speech-Language-
Hearing Association
www.asha.org |
The public site provides in-depth information about speech, language, hearing, and swallowing for individuals with communication disorders, their families, and others. |
Davis Phinney Foundation
www.davisfinneyfoundation.com |
The Davis Phinney Foundation has a single mission. It is to improve the lives of people living with Parkinson's disease. We fund innovative research that will make lives better today while working to prevent and cure this crippling disease tomorrow. |
LSVT Foundation
www.lsvt.org |
The LSVT Foundation website is a primary resource for information about the Lee Silverman Voice Treatment® for treating speech and voice disorders accompanying Parkinson's disease. Geared to both clinicians and clients, the website can be used to locate LSVT®-certified speech clinicians, order materials, and register for upcoming training workshops. |
Michael J. Fox Foundation
www.michaeljfox.org |
This foundation was established in 2000, and is dedicated to helping find a cure for Parkinson's disease through “an aggressively funded research agenda.” The site contains updated research information and funding opportunities. |
National Parkinson Foundation
www.parkinson.org |
The official website of the worldwide organization. Use this site to ask questions about PD, download reports, find a doctor, make donations, purchase items, and learn more about Parkinson's disease. |
Northwest Parkinson's Foundation
www.nwpf.org |
The NWPF is “a Washington state non-profit charity, established to make the Northwest a leading world center of movement disorders knowledge and treatment.” Use this site to access comprehensive updates on PD in the news. |
Parkinson Action Network
www.parkinsonsaction.org |
PAN calls itself “the unified advocacy voice of the Parkinson's community”. A powerful advocacy group, PAN's mission includes a push for increased federal research funding, increased public awareness about PD, and development of a grassroots network including individuals with PD, their families, physicians, researchers, and support organizations. |
Parkinson Alliance
www.parkinsonsalliance.org |
A national non-profit organization dedicated to raising funds to help finance the most promising research to find the cause and cure for Parkinson's disease. |
Parkinson Disease Foundation
www.pdf.org |
The PDF is “a national non-profit organization devoted to education, advocacy, and the funding of research. We strive to bring help and hope to as many as one million Americans who now suffer from this debilitating condition.” |
The Parkinson's Institute
www.parkinsonsinstitute.org |
The Parkinson's Institute is dedicated to seeking a cure for PD and providing the best available medical care for those with PD and related movement disorders. |
Parkinson's Association of the Rockies
www.parkinsonrockies.org |
PAR serves the needs of individuals with PD in the Colorado and Wyoming areas. PAR is dedicated to improving the quality of life for individuals with PD, through direct services, support groups, seminars, and education. |
The Parkinson's Register
www.parkinsonsregistry.com |
The Parkinson's Registry-Muhammad Ali Parkinson Research Center at Barrow Neurological Institute . |
People Living with Parkinson's
www.plwp.org |
A virtual “neighborhood” for people with PD. Their goals include creating “an atmosphere that encourages mutual support and friendship for people living with Parkinson's, their partners, family and friends.” This eclectic site includes information, useful links, photos, poetry, and journals. |
We Move - Worldwide Education and Awareness for Movement Disorders
www.wemove.org |
A comprehensive resource for information of movement disorders, including Parkinson's disease, Multiple System Atrophy, and Progressive Supranuclear Palsy. |
World Parkinson Disease Association
www.wpda.org |
A worldwide, independent, not-for-profit organization, dedicated to improving the quality of life for people with PD worldwide. |