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Links

The following are links to other websites about Parkinson's Disease. Please note that these links will open in a new browser window. To return to the NCVS Parkinson's Research website, just close the new browser window of the linked site.

http://portland.bizjournals.com/portland/stories/2006/02/13/story5.html

This article includes a description of a collaborative effort to develop a home assessment device for individuals with Parkinson's disease. The NCVS has been directly involved in development and analysis of the voice and speech section of the protocol. Data are expected to provide insight into disease progression, and devices may offer additional means to manage PD.

American Parkinson Disease Association - www.apdaparkinson.com

Provides general information for individuals with PD, their families, and health professionals. A major focus of the APDA is on support groups and referral centers throughout the country.

American Speech-Language-Hearing Association - www.asha.org

The public site provides in-depth information about speech, language, hearing, and swallowing for individuals with communication disorders, their families, and others.

LSVT Foundation - www.lsvt.org

The LSVT Foundation website is a primary resource for information about the Lee Silverman Voice Treatment® for treating speech and voice disorders accompanying Parkinson’s disease. Geared to both clinicians and clients, the website can be used to locate LSVT®-certified speech clinicians, order materials, and register for upcoming training workshops.

Michael J. Fox Foundation - /www.michaeljfox.org

This foundation was established in 2000, and is dedicated to helping find a cure for Parkinson’s disease through “an aggressively funded research agenda.” The site contains updated research information and funding opportunities.

National Parkinson Foundation - www.parkinson.org

The official website of the worldwide organization. Use this site to ask questions about PD, download reports, find a doctor, make donations, purchase items, and learn more about Parkinson’s disease.

Northwest Parkinson's Foundation - www.nwpf.org

The NWPF is “a Washington state non-profit charity, established to make the Northwest a leading world center of movement disorders knowledge and treatment.” Use this site to access comprehensive updates on PD in the news.

Parkinson Action Network - www.parkinsonsaction.org

PAN calls itself “the unified advocacy voice of the Parkinson's community”. A powerful advocacy group, PAN’s mission includes a push for increased federal research funding, increased public awareness about PD, and development of a grassroots network including individuals with PD, their families, physicians, researchers, and support organizations.

Parkinson Disease Foundation - www.pdf.org

The PDF is “a national non-profit organization devoted to education, advocacy, and the funding of research. We strive to bring help and hope to as many as one million Americans who now suffer from this debilitating condition.”

The Parkinson's Institute - www.parkinsonsinstitute.org

The Parkinson’s Institute is dedicated to seeking a cure for PD and providing the best available medical care for those with PD and related movement disorders.

Parkinson's Association of the Rockies - www.parkinsonrockies.org

PAR serves the needs of individuals with PD in the Colorado and Wyoming areas. PAR is dedicated to improving the quality of life for individuals with PD, through direct services, support groups, seminars, and education.

The Parkinson's Register - www.parkinsonsregistry.com

The Parkinson's Registry-Muhammad Ali Parkinson Research Center at Barrow Neurological Institute.

People Living with Parkinson's (PLWP, Inc) - www.plwp.org

A virtual “neighborhood” for people with PD. Their goals include creating “an atmosphere that encourages mutual support and friendship for people living with Parkinson's, their partners, family and friends.” This eclectic site includes information, useful links, photos, poetry, and journals.

We Move - Worldwide Education and Awareness for Movement Disorders - www.wemove.org

A comprehensive resource for information of movement disorders, including Parkinson’s disease, Multiple System Atrophy, and Progressive Supranuclear Palsy.

World Parkinson Disease Association - www.wpda.org

A worldwide, independent, not-for-profit organization, dedicated to improving the quality of life for people with PD worldwide.


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