Links
The following are links
to other websites about Parkinson's Disease. Please note that
these
links will open in a new browser window. To return to the NCVS
Parkinson's Research website, just close the new browser window
of the linked
site.
http://portland.bizjournals.com/portland/stories/2006/02/13/story5.html
This article includes
a description of a collaborative effort to develop a home assessment
device for individuals with Parkinson's disease. The NCVS has
been directly involved in development and analysis of the voice
and speech section of the protocol. Data are expected to provide
insight into disease progression, and devices may offer additional
means to manage PD.
American
Parkinson Disease Association - www.apdaparkinson.com
Provides general information for individuals with PD, their families,
and health professionals. A major focus of the APDA is on support
groups and referral centers throughout the country.
American
Speech-Language-Hearing Association - www.asha.org
The public site provides in-depth information about speech, language,
hearing, and swallowing for individuals with communication disorders,
their families, and others.
LSVT
Foundation - www.lsvt.org
The LSVT Foundation
website is a primary resource for information about the Lee
Silverman Voice Treatment® for treating speech
and voice disorders accompanying Parkinson’s disease. Geared
to both clinicians and clients, the website can be used to locate
LSVT®-certified speech clinicians, order materials, and register
for upcoming training workshops.
Michael
J. Fox Foundation - /www.michaeljfox.org
This foundation was
established in 2000, and is dedicated to helping find a cure
for Parkinson’s disease through “an aggressively
funded research agenda.” The site contains updated research
information and funding opportunities.
National
Parkinson Foundation - www.parkinson.org
The official website
of the worldwide organization. Use this site to ask questions
about PD, download reports, find a doctor, make
donations, purchase items, and learn more about Parkinson’s
disease.
Northwest
Parkinson's Foundation - www.nwpf.org
The NWPF is “a Washington state non-profit charity, established
to make the Northwest a leading world center of movement disorders
knowledge and treatment.” Use this site to access comprehensive
updates on PD in the news.
Parkinson
Action Network - www.parkinsonsaction.org
PAN calls itself “the unified advocacy voice of the Parkinson's
community”. A powerful advocacy group, PAN’s mission
includes a push for increased federal research funding, increased
public awareness about PD, and development of a grassroots network
including individuals with PD, their families, physicians, researchers,
and support organizations.
Parkinson
Disease Foundation - www.pdf.org
The PDF is “a
national non-profit organization devoted to education, advocacy,
and the funding of research. We strive to
bring help and hope to as many as one million Americans who now
suffer from this debilitating condition.”
The
Parkinson's Institute - www.parkinsonsinstitute.org
The Parkinson’s
Institute is dedicated to seeking a cure for PD and providing
the best available medical care for those
with PD and related movement disorders.
Parkinson's Association
of the Rockies - www.parkinsonrockies.org
PAR serves the needs of individuals with PD in the Colorado and
Wyoming areas. PAR is dedicated to improving the quality of life
for individuals with PD, through direct services, support groups,
seminars, and education.
The Parkinson's Register - www.parkinsonsregistry.com
The Parkinson's Registry-Muhammad Ali Parkinson Research Center at Barrow Neurological Institute.
People
Living with Parkinson's (PLWP, Inc) - www.plwp.org
A virtual “neighborhood” for people with PD. Their
goals include creating “an atmosphere that encourages mutual
support and friendship for people living with Parkinson's, their
partners, family and friends.” This eclectic site includes
information, useful links, photos, poetry, and journals.
We
Move - Worldwide Education and Awareness for Movement Disorders - www.wemove.org
A comprehensive resource
for information of movement disorders, including Parkinson’s
disease, Multiple System Atrophy, and Progressive Supranuclear
Palsy.
World
Parkinson Disease Association - www.wpda.org
A worldwide, independent, not-for-profit organization, dedicated
to improving the quality of life for people with PD worldwide.
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